My story – Chicioroagă Erica Maria

My name is Erica Maria, a gorgeous little girl, and I was born on May 11, 2017.
I was diagnosed with a rare genetic disease (KIF1A). At present, I cannot see farther from 2 meters, I cannot speak and I cannot walk, this disease being a degenerative one and if I am not treated/stimulated by therapies, it can lead to death.
Hoping for a diagnostic/treatment, I went to a clinic from Belgium, where I managed to be submitted to metabolic tests that are pretty expensive, but, at the same time, very important. The result of metabolic tests was a positive one for me, this meaning nothing wrong was identified.
The second important test I made was WES genetic test in Germany, which identified a pathogenic variant in KIF1A gene, the result being negative. This mutation on KIF1A gene is extremely rare, with a progressive course (the current situation can worsen), 150 cases identified worldwide and it brings with it: hypotony, retardation (from mild to severe), cerebellum atrophy, encephalopathy, epilepsy, optic nerve atrophy, microcephaly, spastic paraparesis, global development retardation. (www.k1fia.org)
At this moment, there is no medicamentous treatment for this genetic disease, therefore I need a lot stimulation performed professionally.
Now, at almost 5 years old, due to the efforts submitted by daily therapies – 2/3 cures, I manage to roll-over, to stretch to objects and to sit, being sustained.
I further need a lot financial support because the cost of the monthly therapies is very high.

Donate and help me to participate to all therapies that are absolutely necessary for the improvement of my health condition and my life quality. My therapies cover all possible forms: swimming, kinesitherapy, sensorial integration therapy, occupational therapy, various therapeutic methods and complementary techniques (therapeutic massage, stretching, elongations, and thermotherapy). Each donation, each helping hand makes me happy and helps me. With a lot of commitment and love from you, I will be able to smile!

Help me by bank transfer!

Accounts
RON : RO82 RNCB 0078 1704 2264 0001, opened with Romanian Commercial Bank
EUR : RO33 RNCB 0078 1704 2264 0010, opened with Romanian Commercial Bank
SWIFT BCR ROBU
Tax registration code 44619301
Registration no. with Register of Associations and Foundations 83 / 07.07.2021
Billing details: donation Chicioroagă Erica Maria

Help me by filling-in the form 230, to redirect 3.5 % of the tax on salary income or taxable pension!

The forms can be filled-in and submitted at ANAF until May 25 of each year, to redirect the withheld tax in the previous year.

*According to the new Tax Code, directing the amount representing up to 3.5% of the tax on the income earned can be made to the same beneficiary for a period of 2 years (checkmark in section II, point 2) and it can be renewed after the expiry of the said period)

The form can be filled-in in two modalities:

Modality 1:

  • Step 1: DOWNLOAD THE FORM
  • Step 2: fill-in the identification data in section I and sign in the box „taxpayer’s signature” at the end of section III (the data of SVUC Association are already filled-in)
  • Step 3: send the filled-in and signed form to SVUC Association, in .pdf / scan format by email to office@svuc.ro, until May 20. The President of SVUC Association will submit the form to ANAF based on a centralized register.
    The form can be submitted also by ANAF online service – Virtual Private Space, if you have electronic signature.

Modalitatea 2: FILL-IN ONLINE

Fill-in, sign and submit the form 230 online, in one minute. Have you filled-in and signed directly on the screen? After pressing the button GENERATE .PDF, by a pop-up message, you can download form 230 in PDF/image format, which you can thereafter send to the email address of SVUC Association: office@svuc.ro
If you want to be more generous, you can convince your friends and relatives to fill-in the form 230 for SVUC Association. Each gesture matters! Collect as more forms 230 possible, then send us a message on the email address of SVUC Association – office@svuc.ro – and a member of the team of SVUC Association will contact you to establish the modality in which you can send us the filled-in forms, if the friends and relatives cannot fill-in the form online.

Help me by a sponsorship! (for legal persons, through a sponsorship contract)

The procedure is simple and without additional costs, the amount being fiscally deductible according to legislation.

Step 1: DOWNLOAD THE SPONSORSHIP CONTRACT
Step 2: fill-in the company’s identification data, as well as the amount being object of the sponsorship contract
Step 3: send the sponsorship contract filled-in and signed, in pdf/scan format by email to office@svuc.ro
Step 4: make the payment to SVUC Association
Pentru mai multe info, vezi rubrica din site dedicată Sponsorizărilor, aici.

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